The First 72 Hours After a Hospice Referral: What to Expect

The First 72 Hours After a Hospice Referral

Hearing the word hospice can feel overwhelming. For many families, a hospice referral comes during an already emotional and uncertain time. Questions arise quickly. What happens next? How soon does care begin? Will my loved one be comfortable? 

Here is what you can expect after a hospice referral during those first important days. 

The Initial Contact

Once a hospice referral is made, care begins quickly. A hospice team member typically contacts the patient or family shortly after receiving the referral. This call helps confirm next steps, answer immediate questions, and schedule the first visit and begin the hospice admission process. 

 The First Visit 

A registered nurse meets with the patient and family in the home, facility or hospital. During this visit, the nurse will: 

• Review the patient’s medical history and current symptoms 
• Discuss goals of care and what matters most to the patient 
• Explain hospice services and answer questions 
• Complete consent and admission paperwork 

This visit sets the foundation for personalized hospice care. Families are encouraged to speak openly and ask anything that’s on their mind. 

Symptom Management and Care Planning 

After admission, the hospice team focuses on comfort and coordination. If pain, shortness of breath, anxiety or other symptoms are present, the care team addresses them promptly. Medications, equipment and supplies are ordered and delivered as needed. 

 The team collaborates to create a care plan tailored to the patient’s physical, emotional and spiritual needs. This plan may include: 

    •    Nursing visits 

    •    Aides for personal care 

    •    Social work support 

    •    Spiritual care 

    •    Volunteer services 

The care plan is flexible and evolves as needs change.   

Caregiver Guidance and 24/7 Support 

Hospice team members help caregivers understand what to expect, how to provide day-to-day care and when to call for help. They explain signs and symptoms in clear, compassionate language. Families are reminded they can reach 24/7 hospice support at any time, day or night. A nurse is always available by phone and can visit when needed.  

Emotional and Spiritual Support 

Beyond medical care, hospice offers reassurance. Social workers and spiritual care coordinators provide emotional support, helping families navigate fear, grief and uncertainty. 

Many families share a common reflection after those first 72 hours: 

 “I wish we had called sooner.”  

Hospice care is not about giving up. It’s about gaining support, comfort and guidance during a difficult chapter. The early days are designed to bring calm, answer questions and help everyone breathe a little easier. 

If you or someone you love has recently received a hospice referral, know this: you don’t have to figure it out by yourself. The first 72 hours are about listening, responding and walking alongside you with compassion and clarity. 

Hospice care meets you where you are — with expertise, respect and heart.